Hi! I’m Leif. 

I started this site because I was diagnosed with Chiari Malformation (Type 1) when I was 14, and honestly, finding info online that really related to me was hard. Most of what I came across was either super technical or aimed at adults. I couldn’t find much that really spoke about teen experiences with this condition.

So, I thought, why not create a space where I could help other people just like me working through Chiari. Whether you've just found out about your diagnosis, have been living with it for a while, or are just curious, I hope you feel at home here.

I'm sharing my story, the ups and downs, and tips I've picked up along the way, so you don’t have to feel alone or overwhelmed. Living with Chiari is a journey, but I believe we can make it easier if we support each other and share what we’ve learned.

Thanks for checking out my site!