My Life with Chiari
Sharing my life post-Chiari surgery
It was tough finding anything online that actually felt like it was for teens going through this – just confusing medical stuff or stories from way older people. My goal is to put real info and experiences out there so other teens like me don't feel lost or alone after their diagnosis or surgery.
About me
I was just your normal 14 year old whose brain was bigger than his skull.
All about Chiari
Here’s what I read and learned after being diagnosed with the rare condition of Chiari Malformation, after a lifetime of what I thought were normal headaches. Turns out, they weren’t….
The surgery, pre and post
Here’s everything I experienced in the lead-up to the surgery and my recovery journey after.